Thinking about you and hoping you get answers soon.
Thinking about you and hoping you get answers soon.
Shelley
Checking in this morning to see if you have gotten any answers and keeping you in my thoughts today.
Checking in, too. Praying everything is okay.
I hope the monitoring has given you some answers by now. Thinking of you guys.
~Andrea~
Senior Member
Gifted Gabber
Your precious baby boy and the whole family are in my thoughts and prayers. I'm sorry for all the stress you're going through.
Christine: Mommy to, Anthony 9.6, Caleb 8.3, Jacob 5.2, Katie Due July 2nd and Our Angel Nevaeh 1/1/07-1/1/07
...oh momma I'm so sorry!! (((Big big hugs)))!!! Really really praying everything is okay! Thinking of you! Please kup!
He just had another seizure. It was a lot less violent this time He is finally hooked up to the EEG. I wish I knew what all the waves meant. Other than that he is in great sprits. He has 18 connectors on his little head. I would post a pic but I don't want to have to upload it and all that jazz. One exhausted mama here for sure.
Every day is a gift. It's just... does it have to be a pair of socks?
Hopelessly Devoted
I'm very sorry. I know this must be so scary for you. I hope you get some answers soon.
Our baby is 3 years old already!
Do you think it may possibly be something genetic...related to his fused toes? Sometimes seemingly unrelated things like that turn out to be connected somehow...just a thought (I have a friend who is going through that right now). I can't imagine how hard this all must be!! Really thinking of you and praying!
Last edited by kellyowens; 01-12-2013 at 03:14 PM.
strangely, I'm glad that it happened again while he was there and in front of the medical staff. so often, we go in to complain about something at the doctor's office and it's like going to a mechanic, where you can't manage to get the exact sound or problem to replicate in front of the specialist. Not that it should happen to your son at all, but while he was in good hands, hooked up... well, hopefully, that will help them to find the right treatment and soon!!! I hope that you get some useful answers!
Praying you all are getting some answers! More prayers being said!
Still praying for you and that little boy!
Jessica (32) and Ryan (31). Madelyn born August 5, 2009 and Malachi born December 23, 2010. Lost a loved baby 02/29/12, 05/14/12 and 07/05/12 all due a serious allergic reaction to fabric softener.
Sorry for what you are going through. Glad you were able to get into ER and get some testing done. I hope they find easy answers for your baby boy!
Praying for answers and that it's something easily treatable.
Lynne, Grandma to three beautiful girls and one handsome little man!
Praying for answers and immediate improvement.
I know we won't have any answers until tomorrow. Thank you ladies so much for your support. It means so much.
He is still resting. He was crying a lot so he is just worn out. I am so exhausted as well. I'm so glad I'm still able to hold him and breastfeed him through all this. Atleast he knows I'm still here for him... It's so nice to feel so connected with him.
Thinking of you and your little sweetheart tonight. Lots of wishes for conscientious doctors, accurate diagnosis and healing.
-- mom to DD1 1/98 and DD2 10/09
Thing 1 (6), Thing 2 (4), Thing 3 (10M)
I hope your lo is doing ok & that you got some answers today
My chalk loving 2 1/2 y.o. boys!
Well they came in around 8 yesterday morning and the neurologist told us the EEG showed no seizure activity but he was going to keep it on 24 hours. He told us he believed that his issues were caused by acid reflux. I could understand that so I was ok with that diagnosis. Well around one he had an episode and the nurse saw it and she told me it looked like a seizure. Well the dr had already discharged us and he had left for the day.
She told us to go home and his seizures weren't dangerous because he doesn't stop breathing. She said if one showed up on the EEG that he would call us tomorrow which is now today.
I have an appt with the neurologist Tuesday so either way I should have answers Tuesday. I wasn't happy being discharged but I knew they wouldn't send us home of something was dangerous. Just ready for Tuesday at 1
It must be hard to have to keep waiting. Hopefully you guys are more comfortable at home. I don't usually wish for reflx but it sounds like a better option than seizures. either way I hope you get a firm diagnosis & a plan.
My chalk loving 2 1/2 y.o. boys!
Gosh, you must be exhausted. It's really hard to keep getting strung along. Like Flynn above, I think reflux would be wonderful in this case! I'll be thinking of you and hoping that you get a good and accurate diagnosis on Tuesday.
-- mom to DD1 1/98 and DD2 10/09
Thinking of you and hoping you get some solid answers very soon.
I would definatly push for another 24-72 hr eeg, pet and mri, if they will do it. That being said its better to find out early if he does have seizures, atleast you know what you are dealing with and can make the needed interventions for his health! I know thats not comforting at all, but its what really matters. I really can understand what you are going through! If you and everyone else think seizures and they look like seizures push them to do something, the longer they wait the longer your child goes without treatment, which "could" mean brain damage. I would also second the genetics, and possibly have him tested since your brother has seizures to. I know how emotionally taxing this is, hang in there you are doing great!
The bolded was my initial thought, too, only I've only had 2 children with it. Luke's case was very severe, and he didn't do what you're describing. Although, every child is different.Originally Posted by kellyowens
(((Hugs)))! Acid reflux?? I have had 7 babies with acid reflux...some severe, and they've never had what you're describing
I agree with babybluesash!
Really praying you get some answers momma...so sorry this is happening! Please kup!!
I just wanted to say, too, that if your gut is telling you seizures, def push it. I swear up and down and all around, Momma's instinct is rarely wrong.
I hope you get definitive answers soon.
Mommy to Lilliana (10/2006) & Summer (10/2011)!
big hugs mama! and big hugs to your sweet little guy. Good luck tomorrow at your appointment...thinking of you..
You guys are in my thoughts and prayers.
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