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Thread: Joining here...

  1. #1
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    Default Joining here...

    Tuesday, after having an ultrasound 2 weeks ago saying there was one baby, we saw TWO babies in the same sack. Imagine my surprise! I had this feeling that I was having twins pretty early on, and honestly didn't even believe the dr when he said there was only one!

    A couple things I wanted to ask, has anyone else had indentical twins where there is no membrane separating them in the sack? I also have an anterior placenta. Anyone have that?

    One of the twins has a fatal diagnosis of anencephaly; but my dr says we can progress like a normal twin pregnancy. I feel unsure about this, but figured he knows what he is talking about. I have a phone conference with my third specialist on Monday. I want to be sure I do everything I can to keep both babies as safe and healthy as I can.

  2. #2

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    Congrats, and sorry to hear about the anencephaly on one of the twins. I would absolutely see a MFM from here on out. Good luck, I wish you all the best.

    ~*~Katrina~*~ Momma to Xander, Hayden & Lily (6) and Jericho (3 1/2)

  3. #3

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    I am very sorry to hear of such a grave diagnosis for one of your twins. HUGS to you! I do know this website has some stories, a couple of people here that I know have both had anencephely babies and the site was comforting. http://www.prenatalpartnersforlife.o...aly_Jessie.htm
    Dee Dee, Mom to 2 handsome young men & 2 beautiful girls!

  4. #4

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    Congrats! I have no personal experience with them sharing a sac, since mine had seprate everything. But I have a cousin whose MoMo twins just turned 1 this weekend.

    *Kimberly* Mommy to Hayden (7), Alexis (5), Makenzie & Brooke (18m)!
    Looking for some bows for your little one? check us out --> www.sweetnsassycouture.com

  5. #5

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    Congratulations! I'm very sorry about the diagnosis for one of your twins. I don't have any experience to share with you. I hope the call on Mon was informative and that you feel like you are getting very good advice. Take care.
    My 3 yo cuties!

  6. #6

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    My twins are Di/Di, so I don't have any experience here, but I wanted to say I'm sorry about the anencephaly. I hope that the call with the specialist will ease your concerns.



  7. #7

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    Congrats on the twins! I'm sorry to hear about the one twin, def sounds like you need to find a good specialist My twins appear to have a membrane so they are thinking Mono/Di. I wish I had more info for you, but this is all new to me too!

    Good luck

  8. #8

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    My momo twins are two now. Sorry you are having to deal with the sad diagnosis of anacephaly. If you have momo twins make sure they treat your pregnancy right. PM me if you want

  9. #9
    3andMe's Avatar
    3andMe is offline Every day is a gift. It's just... does it have to be a pair of socks? Hopelessly Devoted
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    How are you doing now? Any update now that you've had a chance to talk to another specialist?

    I had an anterior placenta with my girl twin, and could barely feel her during my pregnancy. I felt (erroneously) that she would be mellow because she seemed to hardly ever kick or move from what I could tell, but that's just because she was so muffled in my sensation. Turns out she can't hold still at all and she's all kick all the time. I guess you can't really ascribe a personality trait to a baby in utero. The same thing happened but to a lesser degree with my next boy.

    I want to give you congratulations on your twins and to give you support for the difficult times ahead. I spent a lot of time reading other stories of loss after I lost my first child, and I found the stories on an anencephaly web site particularly poignant. I think it can be also hard to cope with the conflicting feelings of excitement and joy on the one hand and grief on the other. I know there are some resources available about grieving the loss of one twin while caring for the surviving one, and can try to find some if you want.

    But again, first and foremost, congratulations, and I'm glad you joined us in here and will be sharing your journey with us.


  10. #10
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    Quote Originally Posted by 3andMe View Post
    How are you doing now? Any update now that you've had a chance to talk to another specialist?

    I had an anterior placenta with my girl twin, and could barely feel her during my pregnancy. I felt (erroneously) that she would be mellow because she seemed to hardly ever kick or move from what I could tell, but that's just because she was so muffled in my sensation. Turns out she can't hold still at all and she's all kick all the time. I guess you can't really ascribe a personality trait to a baby in utero. The same thing happened but to a lesser degree with my next boy.

    I want to give you congratulations on your twins and to give you support for the difficult times ahead. I spent a lot of time reading other stories of loss after I lost my first child, and I found the stories on an anencephaly web site particularly poignant. I think it can be also hard to cope with the conflicting feelings of excitement and joy on the one hand and grief on the other. I know there are some resources available about grieving the loss of one twin while caring for the surviving one, and can try to find some if you want.

    But again, first and foremost, congratulations, and I'm glad you joined us in here and will be sharing your journey with us.
    I had my level 2 ultrasound yesterday, and that just brought more bad news. The anencephalic twin didn't have "evidence" of a stomach. The other twin does not appear to be getting enough blood, they do not seem to be "sharing" it. This increases the risk of still birth for both babies, as well ar reduced brain function for the twin not getting enough blood. They are mono/mono twins, which is why this is happening.

    I could tell the dr was not supportive of the fact that I didn't reduce the pregnancy because of the twin to twin transfusion affecting the healthier baby. I also found out I am having boys, which while it is not devastating, is not what I wanted or felt was happening.

    Has anyone had mono/mono twins and had this transfusion issue? I am exhausted emotionally by this pregnancy.

  11. #11

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    I'm sorry to hear that you received even more bad new at your appointment yesterday. I didn't have MoMo twins so I have no personal expierence. Howeve I have a cousin who had MoMo twins just over a year ago. She had issuse with TTTS from very early on and was put on home bedrest and very closely watched autil about 20ish weeks, when she was put on hospital bedrest so they could keep a closer eye on the babies until she delivered them at 32 weeks.

    *Kimberly* Mommy to Hayden (7), Alexis (5), Makenzie & Brooke (18m)!
    Looking for some bows for your little one? check us out --> www.sweetnsassycouture.com

  12. #12

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    MoMo twins don't commonly have transfusion issues, although they can. I strongly urge you to go to monoamniotic.org and meet those women because we have all been through momo pregnancies and many of them have had losses. They are a wealth of knowledge. Make sure you are with a doctor that knows how to manage a momo pregnancy because it is not the same as any other type of twin. A lot of doctors have never dealt with a momo pregnancy.
    Last edited by muncherbug; 10-03-2012 at 08:13 PM.


  13. #13
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    Quote Originally Posted by Racegirl766k View Post
    I'm sorry to hear that you received even more bad new at your appointment yesterday. I didn't have MoMo twins so I have no personal expierence. Howeve I have a cousin who had MoMo twins just over a year ago. She had issuse with TTTS from very early on and was put on home bedrest and very closely watched autil about 20ish weeks, when she was put on hospital bedrest so they could keep a closer eye on the babies until she delivered them at 32 weeks.
    Good to know! Thanks!!

  14. #14

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    I didn't have momo twins but my boys did have TTTS... TTTS is scary enough I could only imagine adding MoMo to the situation... I almost lost my boys at 28 weeks because of TTTS. Big hugs to you!!!!!

    My amazing daughter born 5/6/09
    my little miracle boys born 5/11/2012 at 32 weeks

  15. #15
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    I forgot to update here. The dr at the mo/mo diagnosis was wrong. The other drs in the practice reviewed the case and they agree its mono/di!!

    They still think the boys have TTTS since Nathaniel cannot swallow and he has no fluid build up. So far it seems Parker is okay, I'm just praying that Parker pulls through this.

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