I want to work there.......
I want to work there.......
Me (38) DH (45) & furbabies * m/c 7/08 4/12 11/12
I did a sensory checklist for the OT and Wyatt has some sensory avoidance behaviors too. Any place I can find more information on all of the sensory type of stuff?
Hmmm, now for that angle I rely on my OT when I have questions so I don't have any special resources to refer you to above and beyond a google search.
I've heard the book The Out of Sync Child is good - haven't read it.
There's a mom in this room who has a child with SPD (sensory processing disorder). You could ask her to share her resources.
Me (38) DH (45) & furbabies * m/c 7/08 4/12 11/12
Gwenn, This is the philosophy the school follows.
http://www.icdl.com/
You're kidding ... now I want to work there even more! Too bad the active duty position DH is putting in for isn't at Bragg!
Me (38) DH (45) & furbabies * m/c 7/08 4/12 11/12
I got a text message from daycare that Wyatt said "UP" today. He also signed WIND during a song from Baby Signing Time CD we were listening to in the car. He has signed "WIND" before but this was the first time he has done it along with a song.
Just wanted to say I'm so glad things are going so well for Wyatt (and you, by extension!).The program he's in sounds so amazing. You are very lucky indeed!
We have E's transition meeting next Thurs, where he'll have his district speech eval, etc, and I'm actually a little worried he's made so much progress recently that he won't qualify for the pre-k. Is it bad for me to hope he underperforms a bit for them?
No, not at all. Wyatt can get booted from this program if he makes too much progress before he's 3. I told his Case Manager that and she looked as me like I was crazy and said.. "Oh no, he won't improve that fast". Thanks lady.Originally Posted by swannie
Just wanted to say I'm so glad things are going so well for Wyatt (and you, by extension!).
We have E's transition meeting next Thurs, where he'll have his district speech eval, etc, and I'm actually a little worried he's made so much progress recently that he won't qualify for the pre-k. Is it bad for me to hope he underperforms a bit for them?But it was the truth. It hurt.. but it was the truth. I think the sensory stuff is becoming more obvious now too. This is so hard when you are the first person you know going through all of this. It isn't like they covered this stuff in the baby books.
There are other things with Wyatt too, Sensory things I wasn't able to recognize as sensory things, because I never knew what they were.
THe staff did let me know after they do their evaluations on him, they will tell me which specialists they recommend and they will give me all the information to take with me before we see those specialists. They also participate in educational studies with UNC and DUKE. We so lucky we moved to this County. I know not everyone has these resources. I wish they were available for everyone. I'm lucky to live some place that back in the 70s the parents got pissed enough they started their own program and it has continued to thrive.
I'm jumping in to this conversation late..I hope it's okay if I butt in.I was skimming through your posts and was interested b/c my son (who is a Jan09 baby) qualified for state services b/c he was considered 6 months behind in speech. He was diagnosed with expressive speech delay but a part of me wonders if he has apraxia (or certain speech behaviors in relation to). How did they diagnose Wyatt with apraxia?
Because of a lack of improvement on JD's part with ECI, we have decided to go with a private agency. However, we can't get in for the two hour evaluation until the middle of July.
I just feel so badly for JD b/c I know he has so much to say but can't do it.
Like I said, hope you don't mind that I popped in on the conversation. But, it sound like Wyatt is in some great hands!
Chiming in w/our experience too: A couple of SLPs we saw initially suspected apraxia for Elliott, since that's how his issues were presenting. But we were told they don't make an apraxia dx until the child is older. Elliott has been "outgrowing" many of the apraxic traits he initially presented with. He still has the expressive delay but has been making steady progress.
As an SLP, I prefer to wait until a child is able to comply with my testing for apraxia, which means imitation of gradually more complex motor patterns. Usually that's once they're over three. But, I have suspected it in children younger than that and prefer to treat those children as though they have apraxia until I can confirm the dx.
Me (38) DH (45) & furbabies * m/c 7/08 4/12 11/12
Thanks for the info! That's what I've heard but it's good to know that SLP's can treat children with apraxia as if they have it without a diagnosis.
Totally. Elliott received PROMPT therapy, and they even coded the bills with the apraxia dx code.
Wyatt never babbled as a baby, never made sounds to entertain himself. Never just laid in bed to talk. People would ask if he knew 2 words and I'd say yes, because he knew what those things were. Like, Where's Jack and he'd look at Jack. He would randomly say na-na (For Banana) but never hear it again. He use to say Dak and Do-Di (for Jack and Loki), but that lasted about a week and stopped. There had not been any consistent language. Now we realize a lot of things seem to be stuck in his head unless it is situational. He has to be hanging off the bed, before he can now say "ell" for Help. Because of the book It Takes Two to Talk, I was able to explain what I was seeing in Wyatt. At school he would try to howl during story time for a wolf that howls at the moon and he would get really excited and make the head movements but nothing was coming out of his mouth. Finally after about a month, he started making the most pathetic howl sound in the world. And it was the big gap between what he can understand and what can come out of his mouth. You could tell him to clean up, throw something away, lets get in the car, go get into bed, go get the ice cream (and he'd get two spoons).I'm jumping in to this conversation late..I hope it's okay if I butt in.
Because of a lack of improvement on JD's part with ECI, we have decided to go with a private agency. However, we can't get in for the two hour evaluation until the middle of July.
I just feel so badly for JD b/c I know he has so much to say but can't do it.
Like I said, hope you don't mind that I popped in on the conversation. But, it sound like Wyatt is in some great hands!
http://www.apraxia-kids.org/
The best resources I've had are,
It Takes Two to Talk - That Swannie Recommended.
One of our Feb 09 Moms is Deaf and works at a Deaf school. 2 of her students are 10 and apraxic. And she Heavily recommended that I start Wyatt signing. And suggested the Baby signing time DVDs. He has mastered about 60 signs since February. He couldn't regress any sounds because he doesn't have any. Her concerns was that he gets delayed in language development it will be even harder for him to get caught up if his speech does start clicking.
Since I started typing. Wyatt has tapped me to get my attention to tell me about the "water" on Dora and the "bird" on Dora. The look of excitement on his face when he can Tell me what he observes is priceless. And anyone that tells me not to use some form of Adaptive Augmentive Communication with Wyatt I'll tell them to kiss my A**. It has helped our relationship so much. How bad is it I use to avoid my child, but now we can take a walk and he can point out Trees, Grass, Clouds, The Moon, Stars, Dogs, Cats.
He just started signing "Wind" with a blowing sound.
His recent SLP (Not the one that evaluated him with CDSA) suspects there is something different than CAS Childhood Apraxia of Speech, going on with Wyatt. But the new school will be able to help in that department.
The PROMPT is suppose to be AWESOME for CAS! PROMPT and KAUFMAN. If your SLP has the KAUFMAN cards, they are copywrited so the SLP can make copies for the parents.
Wyatt just doesn't seem to enjoy his sounds or knows he can enjoy the sounds that come out of his mouth. He won't talk into a microphone, it's like his voice freezes or he just doesn't understand the concept.
We are realizing he does have some sensory issues too. Constantly, running in the rocks, laying in the rocks, making snow angels in sand, mulch, rocks. His quirks are becoming more noticeable as non-age appropriate. But before we use to just think they were just cute toddler things. So now I don't know What the Heck. The school he is about to go to is AWESOME! I am so thrilled and grateful he got in.
But get this....
Gwenn might like this too.
Talked to DH's other co-worker yesterday, their 3 kids were over to swim. His youngest child was a late talker and they thought something was wrong with her. She would only grunt and growl. And they thought she had issues and one day when she was 3 she said DaDa for the first time. Like something clicked.
His most recent SLP told us the DX doesn't really matter as long as they are getting the services they need.
Last edited by Robin0472; 06-11-2011 at 07:10 AM.
That was a great explanation!
Me (38) DH (45) & furbabies * m/c 7/08 4/12 11/12
He did great today. Went in to find the toys he was playing with last week. He didn't even look back for me. I hung his bag up, talked to his teachers for a few seconds and then left. He did really well. Didn't eat lunch, loved snack. And needed snuggles to fall asleep, which were pleasantly given. He ran out and went to the fish tank, tried to find his Speech Therapist in the SLP's room (she doesn't work on Monday's). Ran into another kid we know who got all excited and asked, IS THAT ROBIN AND WYATT??!!!
I picked up the sheet from Wyatt's Dr that needed to be check for the Center. About CBRS, Professional and Paraprofessional, OT, SLP, PT. They called the Dr. about getting the referral to our insurance as an Acute/Urgent Matter. So they could start their evaluations this week. Busy day. Wyatt looks like he's about to pass out he's so tired. I need to give him a bath and get him ready for his day tomorrow. CBRS isn't covered by our insurance, but we'll have to pay 20-30% of the cost out of pocket. We've been selling some items to cover expenses. And I'm still thinking about getting a part time job to help.
He said "no no" and "uh oh" in his sleep last night. He has never talked in his sleep before!
strange..
Thanks Robin for the explanation! That helps a lot. I see some similiar traits you described with Wyatt but not others. I'm so anxious for the evaluation. I feel like JD knows he is behind in some ways, especially when he is around other kids his age (and even others that are younger) and that concerns me.
I talked to the OT today before we left. There are some things marked as vestibular on Wyatt's OT evaluation and some of the comments I told about Wyatt, I guess threw some OT flags. I have to set up an appointment with her later this week.
The day he was born, he tried to sit up. I didn't even know babies could do that. He was a few weeks old and flipped forward out of his bouncy seat and I wrote the company complaining they had a faulty seat. He hated being on his back, he hated to not be held. Until a few months ago he would still cry when he woke up from a nap. She said she can help explain these things to me. She also works with some Social OT stuff too. This is all more new to me than the Speech. I'll share as I learn. He hardly ever liked me reading him a book. He seemed overwhelmed when we'd play mirror games or anything and and want to go away, but nothing seemed to make him happy. I thought I was doing everything right. I went to acupuncture before I got pregnant, No artificial sugar while pregnant, daily vitamins, we delayed vaccinations, we did happiest baby on the block, we were AP parents. We never let him cry it out. Is this all because we didn't let him cry???? I should be counting my blessings that he's healthy and adorable. But I still wonder. What did I do to make him like this.
Thank you for listening.
Mama, you did nothing to "make him" the way he is, other than contribute your DNA. This is how these kids are hardwired. You are making things right by getting him what he needs to adapt better to the world around him. And that is the sign of a truly wonderful mother.
Me (38) DH (45) & furbabies * m/c 7/08 4/12 11/12
Thanks ladies. I'm sorry I got all boo hoo for a moment. I can't believe I started crying to the O.T. I guess I still have a lot of guilt/confusion deep down from when Wyatt was little. Thanks Swannie, I started crying when I read your reply. The OT wasn't in yet when I dropped Wyatt off today. So I need to call back later today.
It's so strange to be back on here and not have a "Like" button as on Facebook.
Wyatt had his PT evaluation today. The PT wasn't in on the IFSP meeting last week. But she did think Wyatt has Edema in his legs and wants us to get that checked out. There are some safety awareness issues that they feel she can help with. And some sort of consistent response to his name. When we play ball he throws a ball to throw it. Not for the reciprocating back and forth. In a whole day, I may get eye contact 10-20% of the day.
At least he's cute! We did go to Big Lots today after school and he was pretty well behaved with his Dad. And no tantrums or melting to the floor.
Great for a good trip out and for a great PT. Those issues with reciprocal play and eye contact can be worked with across all providers, from his teachers at the school, the PT, the SLP, etc.
I wish I had Wyatt here...
Me (38) DH (45) & furbabies * m/c 7/08 4/12 11/12
This school is so awesome. Everyone keeps asking me if I have any questions. I met with the OT today and I interacted with Wyatt. Not exactly sure what they were looking for. We didn't get to go over the OT questionnaire I did. But there are a lot of late development type stuff. Finally understanding and initiating a game of peek a boo. Doesn't like to be touched for a game he doesn't know how to play Ring Around the Rosy. So it seems like OT will be sensory play with lots of rough housing to initiate reciprocal interaction. (I personally think she must be pumping Monster Energy drink directly into her veins). I think I'm going to make this DH's department to attend the OT sessions. I found out the PT did measure his ankles and legs, he's flat foot and may have some ankle/knee issues. We are headed to the beach tomorrow and will have a group meeting the week after.
After OT, I walked with him back to class and sat with him for lunch. He ate a ton as did the other kids. And I laid down with him for nap until he fell asleep. The teachers and everyone love him. And that makes me so happy.
LOL about the energy drink! Sounds like things are coming together.
Me (38) DH (45) & furbabies * m/c 7/08 4/12 11/12
We have been at the beach for the past week with another APA Mom/Family from our DD group. The two kids had a ball! Even with Wyatt's quirks they got along great for two 2 year olds. Beach until the afternoon then naps, back to the house for clean up (sometimes nap at the house), afternoon playing with toys until we figured out what was up for dinner, dinner, play then bed. He slept great!
He said "up" Thursday with an ending P sound. "AhhhP" He has been doing it every since.
And this morning I'm pretty sure he was signing Rain and said "main", he did it about 3 times in a row. I hope it continues.
Lots of increase in the babble too. I can't wait for him to start back at school on Monday. We had a great time at the beach.
He's saying "Weeeeee" in the car now, and he start giggling for no apparent reason. He seems to notice there is a world outside the car window now.
Awesome progress! Jealous of your time at the beach.
Me (38) DH (45) & furbabies * m/c 7/08 4/12 11/12
Wyatt had some transition problems the first few days after being out all week. Had some insurance problems for PT and OT. According to the state we will owe 40% of CBRS (Play Therapy) up to $210 a month. ON top of what we pay for his day school slot. Uggg.
Once the insurance stuff went through, He was able to have a joint PT/SLP session in the PT room. And I was told they had him saying BOOM and a bunch of other words. Definitely a sensory/speech connection with him. DH has been rough housing more with him to get him to makes sounds and it is so funny!
He is definitely saying "Rain" now sounds like. "Wai" with the sign for "Rain".
Friday's at school are waterplay days. So adorable!
Everyone at his school loves him, and that makes me so happy. Working on the potty training, and I can get him to pee in a cup and dump it, but he doesn't like sitting or aiming at the potty. Fun days ahead for us.
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